Seahorse Project

The Seahorse Project came in two distinct phases. Phase I was a feasibility study that explored the potential of telematics in the provision of information and support for people affected by HIV/AIDS. It emphasised user empowerment as a means for more active and informed involvement of patients in making healthcare decisions. Stage 1 of the project undertook needs assessment work, which in turn led to a technical specification for developing and testing pilot demonstrators. Phase II focused on the support, empowerment and awareness for HIV/AIDS the on-line research and self-help exchange. The second phase of the project was developing a common European-wide 'Information Corpus' in the HIV/AIDS field. This, in conjunction with database, navigation and evaluation tools, provided a 'European Clearing House' for HIV/AIDS, that will supply the building blocks for local information and support services being piloted in several European countries. The Clearing House supported peer-validated information and support, storage and dissemination and the development of 'quality marks' for HIV/AIDS. It incorporated tools and infrastructure for the evolution of evidence-based protocols for complementary therapies, using 'virtual meta-analysis'. The overall aim was to develop a European standards benchmark for HIV/AIDS information and support services.

1996-2000

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