CERES: Consumers for Ethics in Research
- CERES: Consumers for Ethics in Research
- Date:
- 1988-2007
- Reference:
- SA/CER
- Archives and manuscripts
Collection contents
About this work
Description
Minutes and other administrative and legal records of the organisation, leaflets and other publications it produced (and some from other sources), including newsletters, some correspondence
Publication/Creation
1988-2007
Physical description
2 boxes, 9 digital items 6.27 MB (6584649 bytes)
Contributors
Acquisition note
Given to the library at Wellcome Collection in February 2014 by Naomi Pfeffer
Biographical note
Founded in 1988 as the Standing Committee of User Organizations for Pregnancy, Childbirth and New Developments in Reproductive Technology, this small voluntary organization evolved into an umbrella for other patient groups, pioneering patients' involvement in research agenda. It held public meetings and published a newsletter and produced guidance for investigators on how to write clear consent forms, and leaflets distributed in their thousands to potential participants in research explaining the expectations and their legal rights.
Terms of use
This collection has been catalogued and is available to library members. Some items have access restrictions which are explained in the item-level catalogue records.
Ownership note
Held by Naomi Pfeffer, a founder member of the group
Permanent link
Identifiers
Accession number
- 2059