CERES: Consumers for Ethics in Research

Minutes and other administrative and legal records of the organisation, leaflets and other publications it produced (and some from other sources), including newsletters, some correspondence

1988-2007

2 boxes, 9 digital items 6.27 MB (6584649 bytes)

Given to the Wellcome Library in February 2014 by Naomi Pfeffer

Founded in 1988 as the Standing Committee of User Organizations for Pregnancy, Childbirth and New Developments in Reproductive Technology, this small voluntary organization evolved into an umbrella for other patient groups, pioneering patients' involvement in research agenda. It held public meetings and published a newsletter and produced guidance for investigators on how to write clear consent forms, and leaflets distributed in their thousands to potential participants in research explaining the expectations and their legal rights.