- Article
- Article
Performing my disability
Caroline Butterwick explores the idea of disability as performative, and the pressure to act out what we think others expect.
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- Article
Why gene editing can never eliminate disability
In a world where DNA testing and gene editing offer ways to eliminate certain disabilities, Jaipreet Virdi explores a more accepting and inclusive approach.
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“People see the disability but forget the ability”
I’m a disabled Asian woman, and mother of four. I’m trying to show people that we have to talk about disability if we want things to change.
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How to thrive in lockdown
Gareth Berliner shares how being a Disabled person has given him the resilience and motivation to find a new creative challenge during lockdown.
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Lying low for lockdown and beyond
For Liz Carr the chances of catching Covid-19 are the same as for anyone else, but as a Disabled person she's at much greater risk of not getting the treatment she needs if she falls ill.
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- Article
Society, not Covid-19, makes us vulnerable
Rick Burgess coped with the death of his mother in February 2020 by immersing himself in the task of protecting his community from Covid-19 and challenging the government's failure to protect and support elderly and Disabled people during the pandemic.
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Our Covid complicity
Athena Stevens thought she had a cold that she tried to ignore, but it turned out to be Covid-19. Here she reflects on how we have all put ourselves and others at risk with the choices we’ve made during this pandemic.
- Article
- Article
Six personal health zines that might change your life
Personal zines put health conditions back in the hands of the people who experience them. Here are six that Wellcome Collection staff love.
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- Article
Why the truth is better than a happy ending
Caroline Butterwick often uses lived experience to inform her journalism, but she’s discovered a tension between the truth and stories that will sell.
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Words of hope and anger
Author and spoken word poet Penny Pepper remembers her childhood dreams, and speaks out against the barriers society uses to prevent disabled people from fulfilling their potential.
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- Article
Walk, interrupted
By listing all the things that get in her way, Caroline Butterwick wants to create an embodied experience of disability and convince you that inclusion is everyone’s responsibility.
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- Article
Good animals, bad humans?
Could an animal be more evolved than a human? Victorian psychologists thought that in some cases the answer could be ‘yes’.
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- Article
The boundaries that shape my writing
While writing about her life can be enormously helpful, Caroline Butterwick needs to regularly reassess her boundaries. Here she explores the line between what’s public and what’s private, and how porous that can be.
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What writing myself has revealed
Caroline Butterwick talks to two creators about how lived experience feeds their art, and reflects on her own year of writing about her life.
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Celebrating our soft toys
After cuddling a teddy bear cured her insomnia, Elspeth Wilson was inspired to speak to four other autistic and disabled adults, who praise the roles soft toys play in their lives.
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A walk through other people’s expectations
The steep path isn’t the only thing Caroline Butterwick has to navigate on her Lakeland hike. Always aware of other people’s expectations, she continually monitors how her disability might seem to strangers.
- Long read
- Long read
Primodos, paternalism and the fight to be heard
Journalist Florence Wildblood examines the case of Primodos – a conveniently quick but risky hormone pregnancy test that was prescribed in the 1960s and ’70s – and profiles two women at the story’s shocking heart.
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Happy Joy Smile
Drawn from real-life experiences, this short story depicts a character negotiating the UK’s current mental health system. Discover what happens as they encounter waiting lists, sketchy healthcare and punitive government bureaucracy.
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Reclaiming my story
Sharing her story of mental illness and treatment with trainee social workers has helped Caroline Butterwick make sense of her past, and continues to be a positive part of her life today.
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Writing back to authority
As she cuts up old doctors’ letters and uses them to compose absurd poems, Caroline Butterwick reflects on the catharsis of creation and proposes writing as a way to take back control.
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- Article
How writing helps me manage schizophrenia
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Dyslexia and its misconceptions
Overcoming common myths about dyslexia only adds to the challenges of growing up with the condition. Madeleine Morley, who was diagnosed with dyslexia aged eight, goes into myth-busting mode and shares her personal experiences.
- Article
- Article
Collecting pandemic stories
Find out how personal notebook jottings from two flatmates became ‘Journals of a Pandemic’, a comprehensive diary-keeping project encompassing dozens of writers from a wide variety of backgrounds.
- Photo story
- Photo story
The man who remembers everything
Tilney1 can remember his life in minute detail, but can’t control the incessant intrusion of thoughts and images from the past. As cuts to mental health services isolate him more and more, a crisis approaches.
- Article
- Article
Befriending heavy breathers
Read the fascinating story behind the rare manual that helped volunteers on one of Britain’s first free telephone helplines to deal with masturbating callers.