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"Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK", 2005 and 2nd edition 2008. See also SA/SCT/B/1/6 and SA/SCT/B/2/4a.

Brent Sickle Cell and Thalassaemia Centre

Publications and grey literature

Research and policy reports

NHS Sickle Cell and Thalassaemia Screening Programme

Brent and Harrow Health Authority

Sickle Cell Society

UK Thalassaemia Society digital publications

Thalassaemia International Federation

Health Education England

Human Genetics Commission

National Blood Service

National Confidential Enquiry into Counselling for Genetic Disorders

National Confidential Enquiry into Patient Outcome and Death

NHS Centre for Reviews and Dissemination/Social Policy Research Unit, University of York

Daphne Heald Research Unit, Royal College of Nursing

City and Hackney Health Authority

African Association for Maternal and Child Care International.

De Montfort University

ETHNOS/NHS Sickle Cell and Thalassaemia Screening Programme.

Various reports - UK

Various reports - US

Various reports - International

UK Thalassaemia Society

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UK Thalassaemia Society

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