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Achieving justice in genomic translation : rethinking the pathway to benefit / edited by Wylie Burke [and others].

  • Burke, Wylie.
Date
[2011], ©2011
  • Books

About this work

Publication/Creation

Oxford : Oxford University Press, [2011], ©2011.

Physical description

x, 212 pages : illustrations ; 25 cm

Contributors

Bibliographic information

Includes bibliographical references and index.

Contents

Making good on the promise of genetics : justice in translational science / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.

Languages

  • English


Where to find it

  • LocationStatus
    Medical Collection
    WB60 2011A17
    Open shelves

Permanent link


Identifiers

ISBN

  • 9780195390384
  • 0195390385