The governance of genetic information : who decides? / edited by Heather Widdows and Caroline Mullen.

Date:
2009
  • Books

About this work

Description

"This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance."--BOOK JACKET.

Publication/Creation

Cambridge : Cambridge University Press, 2009.

Physical description

xi, 235 pages ; 24 cm.

Series

Contributors

Contents

The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Søren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.

Bibliographic information

Includes bibliographical references and index.

Type/Technique

Languages

Subjects

Where to find it

  • LocationStatus
    History of Medicine
    AOT.AQ
    		Open shelves

Permanent link

Identifiers

ISBN

  • 9780521509916
  • 0521509912