Sickle Cell Society

Institutional records of the Sickle Cell Society, relating to its activities and organisation. Records include business papers of the Society, including fundraising documents, annual reports, project papers, minutes, correspondence, and other records relating to the running of the Society. The collection also includes photograph albums, publications, newsletters and audiovisual materials. There is some crossover with the archive of the Brent Sickle Cell and Thalassaemia Centre, SA/SCT.

1970s-2010s

29 boxes, 4 outsize boxes, 3 film reels, 1 videotape reel, 6 MiniDV cassettes, 1 VHS cassette, 11 DVDs, 1 CD-ROM, 202 digital items 801.81 MB

The collection was not in a specific overall arrangement at the point of acquisition, although series of items kept together by the record keeper have been retained as far as possible. Titles in quotation marks are the original titles on the files, all other titles were assigned by the cataloguer.

The collection has been arranged by the cataloguer as follows:

Administration and governance;

B: Project and correspondence files;

C: Publications (separated into those produced by the Society and those produced by other organisations and collected by the Society);

D: Photographs (photo albums, loose photos, and slides);

E: Audio visual-material (films and videos collected by the Society).

Donated by Sickle Cell Society and transferred from their London office in 2021.

The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life.

First set up as a registered charity in 1979, the Sickle Cell Society has been working alongside health care professionals, parents, and people living with sickle cell to raise awareness of the disorder. The Society’s aim is to support those living with sickle cell, empowering them to achieve their full potential.

The Sickle Cell Society believes that individuals with sickle cell have the right to quality care. This can only be achieved if funding is made available to educate health carers and other professionals about the condition, which the Society aims to provide.

The Society does not discriminate between the types of sickle cell disorders or the ethnic groups concerned. Both sexes are equally affected, and should have equal access to support and services within a confidential and sensitive environment.

The Society has a network of volunteers who play an important part in running the charity, providing administrative backup, and helping with fund-raising activities.

The Society undertakes fundraising activities and utilises public donations from organisations and individuals to carry out activities, including financing research and educational projects and providing holidays for children suffering from sickle cell.

Information compiled from Sickle Cell Society's website, Jan 2022.

The Brent Sickle Cell and Thalassaemia Centre archive is also held at Wellcome Collection. See reference SA/SCT for more details.

This collection has been catalogued and is available to library members. Some items have access restrictions which are explained in the item-level catalogue records.

Oral histories are being created as part of the HLF archive project and will be offered to Wellcome for acquisition at the point of creation; Sickle Cell Society is also encouraging individuals to donate records relating to their own experiences of sickle cell disease. The Sickle Cell Society will get individuals to sign ownership of these records to them, and Wellcome will consider acquiring these records as part of its usual acquisitions process as an accrual to the Sickle Cell Society archive.