UK BIOBANK (Ethics and Governance Council )

Papers of the UK Biobank Ethics and Governance Council.

2000s

8 MAT001 Deepstore boxes

Donated in August 2018

UK Biobank is a major national health resource with the aim of improving the prevention, diagnosis and treatment of a wide range of serious and life-threatening illnesses. Between 2006-2010 UK Biobank recruited 500,000 people aged between 40-69 from across the country to take part in the project. They provided detailed biographical and medical information along with blood, urine and saliva samples and agreed to have their health followed. Over many years this will build into a powerful resource to help scientists discover why some people develop particular diseases and others do not.

UK Biobank was established by the Wellcome Trust, MRC, Department of Health, Scottish Government and Northwest Regional Development Agency. It has also had funding from the Welsh Assembly Government, British Heat Foundation and Diabetes UK. UK Biobank is hosted by the University of Manchester and supported by the National Health Service (NHS).

The Ethics and Governance Council is an independent committee established by the Trust and MRC to act as an independent guardian of the UK Biobank Ethics and Governance Framework (EGF) and advise on its revision, to monitor and report publicly on the conformity of the UK Biobank project with the EGF and to advise more generally on the interests of research participants and the general public in relation to UK Biobank. The EGC was established in 2004 and comprises 10 members. The Secretariat is hosted by the Trust.

This collection is currently uncatalogued and cannot be ordered online. Requests to view uncatalogued material are ocnsidered on a case by case basis. Please contact collections@wellcomecollection.org for more details.

Transferred to Wellcome Collection from the Policy team at Wellcome, from the UK Biobank EGC Secretary.