The boy whose skin fell off.

The programme follows the last months in the life of Jonny Kennedy. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa(EB), which meant that his skin fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. A very moving film in which Jonny and his family talk honestly about their feelings as we follow them as he plans his funeral and arranges for the work for his charity to continue after his death.