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Wellcome Collection will have reduced opening hours from 10am to 5pm from Tuesday 21 until Sunday 26 June, due to disruption caused by industrial strike action affecting UK transport networks. We apologise for any inconvenience caused during this week. 

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"This report presents case studies inspired by a workshop organised as part of the JISC-funded Patients Participate project, in June 2011. The project brought together The British Library, UKOLN and the Association of Medical Research Charities together in partnership, for a feasibility study which aimed to explore the potential of developing a useful body of lay information for patients and those interested in biomedical and health research."--P. 3.

Patients Participate : bridging the gap between information access and understanding in health research.

Science communication : culture, identity and citizenship / Sarah R. Davies, Maja Horst.

How have social media affected risk communication in pandemics? / Ammar Hilali.

Catalogue and order form 1997 / British Diabetic Association.

Understanding healthcare information / Lyn Robinson.

"This volume of original essays explores the power of network thinking and analysis for humanities research."--Provided by synopsis.

xv, 266 pages : illustrations (some colour), maps, charts ; 22 cm

Viral networks : connecting digital humanities and medical history / edited by E. Thomas Ewing and Katherine Randall.

xiv, 290 pages : colour illustrations ; 23 cm

Sharing clinical trial data : maximizing benefits, minimizing risk / Committee on Strategies for Responsible Sharing of Clinical Trial Data, Board on Health Sciences Policy, Institute of Medicine of the National Academies.

"Motivated by the explosion of molecular data on humans-particularly data associated with individual patients-and the sense that there are large, as-yet-untapped opportunities to use this data to improve health outcomes, Toward precision medicine explores the feasibility and need for "a new taxonomy of human disease based on molecular biology" and develops a potential framework for creating one. The book says that a new data network that integrates emerging research on the molecular makeup of diseases with clinical data on individual patients could drive the development of a more accurate classification of diseases and ultimately enhance diagnosis and treatment. The "new taxonomy" that emerges would define diseases by their underlying molecular causes and other factors in addition to their traditional physical signs and symptoms. The book adds that the new data network could also improve biomedical research by enabling scientists to access patients' information during treatment while still protecting their rights. This would allow the marriage of molecular research and clinical data at the point of care, as opposed to research information continuing to reside primarily in academia. Toward precision medicine notes that moving toward individualized medicine requires that researchers and health care providers have access to very large sets of health- and disease-related data linked to individual patients. These data are also critical for developing the information commons, the knowledge network of disease, and ultimately the new taxonomy."--Publisher's description.

xiii, 128 pages : color illustrations ; 23 cm

Toward precision medicine : building a knowledge network for biomedical research and a new taxonomy of disease / Committee on A Framework for Developing a New Taxonomy of Disease, Board on Life Sciences, Division on Earth and Life Sciences, National Research Council  of the National Academies.

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Patients Participate : bridging the gap between information access and understanding in health research.

Science communication : culture, identity and citizenship / Sarah R. Davies, Maja Horst.

How have social media affected risk communication in pandemics? / Ammar Hilali.

Catalogue and order form 1997 / British Diabetic Association.

Understanding healthcare information / Lyn Robinson.

Viral networks : connecting digital humanities and medical history / edited by E. Thomas Ewing and Katherine Randall.

Sharing clinical trial data : maximizing benefits, minimizing risk / Committee on Strategies for Responsible Sharing of Clinical Trial Data, Board on Health Sciences Policy, Institute of Medicine of the National Academies.

Toward precision medicine : building a knowledge network for biomedical research and a new taxonomy of disease / Committee on A Framework for Developing a New Taxonomy of Disease, Board on Life Sciences, Division on Earth and Life Sciences, National Research Council of the National Academies.

Open frontiers, closed doors : bugs in Europe's information highways or problems in communicating biotechnology / Karl Simpson.

SARS unmasked : risk communication of pandemics and influenza in Canada / Michael G. Tyshenko ; with assistance from Cathy Paterson.

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Patients Participate : bridging the gap between information access and understanding in health research.

Science communication : culture, identity and citizenship / Sarah R. Davies, Maja Horst.

How have social media affected risk communication in pandemics? / Ammar Hilali.

Catalogue and order form 1997 / British Diabetic Association.

Understanding healthcare information / Lyn Robinson.

Viral networks : connecting digital humanities and medical history / edited by E. Thomas Ewing and Katherine Randall.

Sharing clinical trial data : maximizing benefits, minimizing risk / Committee on Strategies for Responsible Sharing of Clinical Trial Data, Board on Health Sciences Policy, Institute of Medicine of the National Academies.

Toward precision medicine : building a knowledge network for biomedical research and a new taxonomy of disease / Committee on A Framework for Developing a New Taxonomy of Disease, Board on Life Sciences, Division on Earth and Life Sciences, National Research Council of the National Academies.

Open frontiers, closed doors : bugs in Europe's information highways or problems in communicating biotechnology / Karl Simpson.

SARS unmasked : risk communication of pandemics and influenza in Canada / Michael G. Tyshenko ; with assistance from Cathy Paterson.

Stay in the know

Wellcome collectionWellcome Collection

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