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Governance of data access / Expert Advisory Group on Data Access. Attribution 4.0 International (CC BY 4.0). Source: Wellcome Collection.
Research data can often be highly valuable for use beyond the original study in which it was collected, and there has been a recent shift among funders, policy makers, publishers and the research community towards encouraging and enabling the sharing of research data with secondary users.A key challenge for researchers producing these datasets is in ensuring that the right balance can be struck between protecting the rights and interests of research participants, and maximising the value of the data generated through enabling them to be further used. EAGDA’s report, published in April 2015, sets out a number of recommendations to its funders about how they could best support the development and implementation of good governance for access to data within their research communities.