Ethnicity and screening for sickle cell/thalassaemia : lessons for practice from the voices of experience / Simon M. Dyson.

  • Dyson, Simon
Date:
2005
  • Books

About this work

Description

Screening policies for sickle cell and thalassaemia have only recently been formalized in the UK. This book asks what types of ethnicity information are relevant for health professionals to ask as part of this screening and why. Through extensive use of interview material, the book draws upon the experiences of sickle cell and thalassaemia counsellors who have been at the forefront of understanding in this area.

Publication/Creation

Edinburgh ; London ; New York : Elsevier Churchill Livingstone, 2005.

Physical description

x, 200 pages ; 25 cm

Contributors

Related material

This book was donated as part of the Sickle Cell Society archive held by Wellcome Collection, reference SA/SCS https://wellcomecollection.org/works/erermr9

Notes

Copy 1. Donor: Sickle Cell Society.

Contents

1. Sickle cell, thalassaemia and haemoglobinopathy counselling -- 2. Listening to the voices of experience -- 3. Ethnicity, genetic ancestry, and the failure of 'race-thinking' -- 4. Screening under pressure -- 5. reactions of minority ethnic groups -- 6. reactions of majority ethnic groups -- 7. Towards a first-class service -- 8. future of screening -- 9. Conclusion -- App. 1. Letter to haemoglobinopathy counsellors -- App. 2. Participant information sheet -- App. 3. Participant consent form -- App. 4. Topic guide for interviews with haemoglobinopathy counsellors -- App. 5. Suggested ethnicity question.

Bibliographic information

Includes bibliographical references (pages 191-197) and index.

Type/Technique

Languages

Subjects

Where to find it

  • LocationStatusAccess
    Closed stores
    M30519

Permanent link

Identifiers

ISBN

  • 0443102325
  • 9780443102325