Ethnicity and screening for sickle cell/thalassaemia : lessons for practice from the voices of experience / Simon M. Dyson.

Edinburgh ; London ; New York : Elsevier Churchill Livingstone, 2005.

x, 200 pages ; 25 cm

This book was donated as part of the Sickle Cell Society archive held by Wellcome Collection, reference SA/SCS https://wellcomecollection.org/works/erermr9

Includes bibliographical references (pages 191-197) and index.

1. Sickle cell, thalassaemia and haemoglobinopathy counselling -- 2. Listening to the voices of experience -- 3. Ethnicity, genetic ancestry, and the failure of 'race-thinking' -- 4. Screening under pressure -- 5. reactions of minority ethnic groups -- 6. reactions of majority ethnic groups -- 7. Towards a first-class service -- 8. future of screening -- 9. Conclusion -- App. 1. Letter to haemoglobinopathy counsellors -- App. 2. Participant information sheet -- App. 3. Participant consent form -- App. 4. Topic guide for interviews with haemoglobinopathy counsellors -- App. 5. Suggested ethnicity question.

Copy 1. Donor: Sickle Cell Society.