The boy with proteus syndrome.

A documentary about nine-year-old Jordan who has a rare genetic condition called Proteus Syndrome which causes bones, joints and their connective tissue to grow uncontrollably. Proteus Syndrome is probably what the 'elephant man' Joseph Merrick suffered from. We follow Jordan and his family as they travel to the National Institute of Health in WAshington D.C. to see if they can find a way to help him keep walking.