The Family Route Map Project: Finding a way through the maze
- Date:
- 2008
- Reference:
- SA/GIG/C/2/13
- Part of:
- Genetic Alliance UK
- Archives and manuscripts
About this work
Description
Report on the development of a tool to help individuals and their families with genetic conditions, together with their carers and healthcare professionals, find current services and information.
Also includes leaflets on the following: Multiple Endocrine Disorders, Barth Syndrome, Gorlin Syndrome, Myotonic Dystrophy, Nail Patella Syndrome, and SWAN (Syndromes Without a Name).
Publication/Creation
2008
Physical description
1 Volume
Where to find it
Location Status Access Closed stores