The bleeding disease : hemophilia and the unintended consequences of medical progress / Stephen Pemberton.

Baltimore : Johns Hopkins University Press, 2011.

xviii, 377 pages : illustrations ; 24 cm

Introduction : hemophilia as pathology of progress -- The emergence of the hemophilia concept -- The scientist, the bleeder, and the laboratory -- Vital factors in the making of a masculine world -- Normality within limits -- The hemophiliac's passport to freedom -- Autonomy and other imperatives of the health consumer -- The mismanagement of hemophilia and AIDS -- Conclusion : the governance of clinical progress in a global age.

Includes bibliographical references (p. 305-363) and index.